Denial:
This mostly affects parents when their child had just been diagnosed with Autism. You can understand why, as they may believe that their child has wrongly been diagnosed as they may just have a speech delay if they won't talk, or they are just having some sort of learning disability so because of that they are not doing well in school.
Penafian
Ini memberi kesan kepada ibu bapa orang yang baharu didiagnosis dengan autisme
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Ini adalah kerana mereka merasakan anak mereka telah salah didiagnosis dan mungkin ada kelewatan percakapan atau kalau mereka tidak boleh bercakap mereka mempunyai kepayahan pembelajaran dan menyebabkan anak mereka tidak mendapat markah tinggi di sekolah
Sadness:
One of the biggest feelings that can affect the parents mostly is the sense of sadness. This is because of the way that they behave is just not normal, compared to other children. However this depends on how severe the Autism is
You look at them and look at other children, you will sad as some of them just need a lot of help to do so many things. Putting on their own clothes, asking them to go to the toilet, washing their hands. all need help
I was a centre once, and I was helping out the People with Autism sow and bead , and they were all older than me.
One of them , seemed to have a more severe kind of Autism, he had a very short attention span, he laughed out of nowhere, he could not speak and just made sounds. You look at him and sometimes have a sense of sadness that a person over the age of 20 has troubles doing basic things.​
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Sedih
Salah satu perasaan yang boleh memberi kesan negatif kepada ibubapa ialah perasaan sedih. Ini kerana cara tingkah laku mereka tidak normal berbanding dengan kanak kanak lain. Namun ini bergantung kepada keterukan tahap autisme
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Ibubapa akan berasa sedih kerana kebanyakkan mereka perlu bantuan untuk melakukan banyak tugas biasa seperti memakai baju sendiri, pergi ke tandas, membasuh tangan.
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Semasa saya pergi ke pusat NASOM dan saya menolong mereka menjahit dan mencucuk lubang walaupun mereka semua tua dari saya.
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Salah seorang dari mereka kelihatan seperti mempunyai tahap autisme yang teruk dan dia mempunyai tahap tumpuan yang sangat singkat .Tiba-tiba ketawa dan membuat bunyi sahaja. Saya melihat dia dan merasa sedih kerana remaja dia seperti saya saya menghadapi cabaran membuat tugas mudah
Stress:
One of the biggest challenge of taking care of Autistic children and people. Is trying to control Speaking from so much experience it is quite straining on oneself
Here is are just a few examples that I or/ and parents experienced:
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Being unable to sleep, or waking up early in the night so you have to stay awake with them.
My brother has problems sleeping, he has the most irregular to no sleeping pattern at all in fact, and when he can't or does not want to sleep he will go around jumping and flapping and screaming in the middle of the night.
He would not sit still
It is my mother who has to go through it every single day unless he feels like sleeping early and she is always stressed especially when he has class the next day so she is stressed out because of it
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Tekanan
Salah satu cabaran yang besar membantu budak autisme adalah mencuba mengawal tekanan. Saya bercakap dari pengalaman sendiri kerana ia memberi tekanan pada saya sendiri
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Ini adalah contohnya pengamalan saya dan ibu bapa saya
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Tidak boleh tidur, terjaga di tengah malam untuk mencubamenidurkan mereka mereka yanag susah
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Adik saya mempunyai masalah tidur yang teruk corak tidurnya memang pelik dan jika dia tidak dapat tidur dia akan melompat ,berkipas tangan dan menjerit di tengah malam
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Dia tidak akan duduk diam dan Ibu saya yang pernah melalui keadaan ini setiap malam melainkan terlampay penat. Dan jika kurang tidur, dia akan mengantuk dan mengamuk semasa terapi hari kemudiaanya
Worried:
They may be worried for two reasons, for the firstly the behaviours that the child may do, behaving aggressively as you go out, going and flapping out of nowhere, invading people’s space. So to what the child or person can do to other people or to themselves Or to the future of the child, what is going to them in the future. Is he going to be fine, what will happen if they are not fine, what am I going to do?
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Bimbang
Kebimbangan keluarga kami wujud berbagai sebab Paling utama adalah tingkah laku adik saya yang akan menjadi agresif ketika keluar dan berkipas tangan tiba tiba, dan mencoroboh ruang orang .
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Kesimpulanya kami amat bimbang apa mereka boleh buat kepada orang lain atau pada diri sendiri
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Keduanya masa hadapan anaknya, adakah dia baik baik sahaja , apakah akan terjadi bila saya sudah meninggal, apakah akan saya membuat
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Embarrassment:
This is quite a sad one, sometimes as these people with Autism can do things that can feel quite embarrassing
Imagine: You and your Autistic child were to go out to a shopping area and all of a sudden your child is throwing a tantrum, and crying. You do your best to calm him down but it is to no avail. People stare at you as they walk by, a guard comes by and asks you to quiet the child down you have no idea.How would you feel in that situation above?Another effect is that they know some people are thinking that they are bad parents because they did not teach them well or cannot control their child and it embarrasses and hurts them because of they people don’t understand that it is hard to take care of people with Autism because of the problems that they have.
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Malu
Ini agak sedih, kadang kadang mereka boleh membuat tindakan yang boleh membuat kita merasa malu
Bayangkan
Anda dan anak auitsma anda pergi ke tempat membeli belah dan tiba tiba anak anda mengamuk dan mengangis. Segalanya telah dilakukan untuk menenangkan dia tetapi anda tidak berjaya. Orang merenung sambil mereka berjalan ,seorang pengawal menyuruh anda diamkan anak itu tetapi anda tidak tahu apa yang dapat dilakukan untuk menenangkanya
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Apakah perasaan anda dalam keadaan itu?
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Selai itu adalah mereka tahu ada orang yang memikir mereka adalah ibu bapa yang teruk kerana tidak mengajar anaknya dengan betul atau mereka tidak tahu mengawal anaknya dan ini memalukan mereka , perasaan ini menyakitkan hati mereka kerana ramai orang tidak faham kesusahan untuk menjaga orang autisma kerana cabaran yang mereka menghadapi setiap hari
Anger:
We are human, and although we know they have troubles we can sometimes get angry at them . We may not be able to control our anger when they won’t control their temper, or when they do not listen to any of the instructions given
Kemarahan
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Kita semua manusia dan walaupun kita faham mereka ada kekurangan tetapi perasaan kecewa dan marah dengan mereka tahap wujud. Kita mungkin tidak boleh mengawal kemarahan kita ketika mereka tidak boleh mengawal perasaan mereka denagn mengamuk atau bila mereka tidak mendengar dan mengikut peraturan.
​Hopelessness:
Sometimes even after help has been given, they are still not making progress. All the therapy, all the loving and care, all the help and they are still the same.'
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Putus asa
Kadang kadang walaupun selepas banyak bantuan terapi , kasih sayang bantuan sudah diberikan dan tiada perubahan nyata dan mungkin tiada banyaj kemajuan. Adalah tidak menghairankan ibubapa dan penjaga mudah berasa putus asa
Click here to read a story about hopelessness